knightfan26917 Posted October 10, 2011 Report Share Posted October 10, 2011 * My "big heart" has FINALLY won me a DATE... ...with a knife! 11/07/2011 = catheterization 11/08/2011 = my 4th Open Heart Surgery; Recovery time, ~2-3 months. More information in a bit, but first... DETAILING: Anyone able to or know someone who will clean my 6 cars for me yet this October? Since my "car season" will be over sooner than usual, I will not have time to detail them, let alone get to 1,000 miles on each of them for what would've been the 3rd year in a row. PRE-OP FUN: Who is IN for a "PRE-SURGERY PARTY"? Stop in for 5 minutes or all 5 hours... ~5:30p-10:30p Saturday, 10/29/2011 @ Beef Villa 1225 W SPRING ST S Elgin IL http://www.beefvilla.com/ FB event: https://www.facebook.com/event.php?eid=103976313046427 NEPHEW TIME: Hard to believe he will be THREE just a few days after my upcoming OHS: http://www.facebook.com/photo.php?fbid=2430260958146&set=a.2430259678114.2146020.1300282613&type=1&l=f202ae6938 ...& now, BACK TO OHS NEWS.... I've been quiet because it took me time to process the news from my 09/29/2011 appointment with the surgeon, make some decisions & prep info to share. I'm NOT scared, but I dread enduring another OHS so soon after my 3rd one ... and I'm VERY frustrated/angry at the irony of how this will affect my finances/plans/cars/vacation/road trips. I'm starting to "hate" my "big heart", literally and figuratively. Remaining upbeat is tough with so much happening and on my mind (other than the surgery). I HATE medical bills and wasting time. Life is too short! My surgeon appointment was originally scheduled for 09/15/2011, but that never happened. If a friend of mine at the hospital hadn't sent me a message that morning asking what time I'd be there, I wouldn't have known. She noticed I wasn't on the schedule. So, I called and was told the surgeon was out of town at a conference. They CLAIMED to have called me, but the number they told me they called wasn't mine. UGH. So, LONG story short, the appointment was moved to 09/29/2011. The trouble my "big heart" has me in now: My ascending aorta is 5.6 at the middle; 5.3 at the root. The aorta (to the arch) & the aortic valve will be replaced with a tissue (cow) valve; I will have a small farm inside of me! The Tuesday, 11/08/2011, surgery will be performed by Dr Russell at Chicago's Northwestern Memorial Hospital. This is different than my prior 3 OHSs, done at Chicago's Children's Memorial Hospital... ...November 1977 ... 1st pig's valve installed to replace the pulmonary artery I was born without ...March 1987 ... 2nd pig's valve installed (outgrew 1st one) ...January 6, 2003 ... 3rd pig's valve installed (2nd one too calcified) & 1st pacemaker installed My CHD Quilt Block: http://www.chevyasylum.com/cort/'>http://www.chevyasylum.com/cort/quilt.html'>http://www.chevyasylum.com/cort/quilt.html I appreciate ALL of the continuing support. Good thing about the surgery is that I'll have plenty of time to read, WRITE more of my Route 66 story, plan road trips, listen to music, etc. Though, I wish I was on a ROAD TRIP or back on the RADIO ... or both. My Route 66 story: http://whenthegoingisgood.com/category/route66/ My road trip (& other) pics: http://www.chevyasylum.com/cort/roadtrips/roadtrips.html http://picasaweb.google.com/knightfan26917 My radio show playlists: http://www.chevyasylum.com/cort/radioshows.html All of the above linked from: http://www.chevyasylum.com/cort/ With so much happening, it's going to be a rough and fast few weeks. I have LOTS to do [pre-op appointments, move stuff out of my room, drive my cars, work, etc.], so I'll be online sporadically.... IRONY ROCKS! Cort | 38.m.IL | pigValve + paceMaker | 5 Monte Carlos + 1 Caprice Classic CHD.MCs.CC + RoadTrips.models.RadioShows.legos.HO.us66 = http://www.chevyasylum.com/cort "Wonderin' what's real and wonderin' why" __ Andy & Terry Murray __ 'Treasures For The Road' Quote Link to comment Share on other sites More sharing options...
knightfan26917 Posted October 23, 2011 Author Report Share Posted October 23, 2011 * PRE-SURGERY PARTY! WHO IS IN? ~5:30p-10:30p ... Saturday ... 10/29/2011 @ Beef Villa 1225 W SPRING ST S Elgin IL http://www.beefvilla.com/ FB: https://www.facebook.com/event.php?eid=103976313046427 Plenty of hotels around from which to choose, if needed. For "EARLY BIRDS" or "LATE OWLS", we could plan afternoon stuff as well as go elsewhere at 10:30p.... If you are planning to come, please contact me via FB... ...or PH: 847- 337- 9897- ...or EM: faithcubsmc2691 @ aol.com NEPHEW TIME, 10/16/2011 I caught an AWESOME pic of him, imho, anyway... ROUTE 66 STORY I've added a section, #20 (The Picture), 10/16/2011: http://whenthegoingisgood.com/2011/10/17/_thats-the-highway_-11/ SURGERY & POST-SURGERY: As in 2003, my sister will send Email updates, and this time, she will post updates to my Facebook Wall... https://www.facebook.com/profile.php?id=1300282613 Those who receive the Emails or see the updates on FB are WELCOME to share those updates on the various groups/message boards. 3rd OHS: Some of the Emails my sister sent during/after my January 6, 2003, surgery.... >>"cort's surg.", 01/06/2003, 8:14pm<<hello all: it is about quarter til eight, jan 6. i just arrived home from the hospital (children's memorial). cort's surgery took approximately seven and a half hours by our estimation. he was told to arrive at children's memorial around six for surgery by seven thirty, but once we arrived we were told that nothing would begin until seven, and that surgery wouldn't begin until eight thirty. i believe they took him into the operating room around just before nine o'clock. we were updated about every two hours on his status, which was good with every update. sometime between four and four thirty i think it was, the doctor came out to tell us that they were finished, and that it would take about another forty-five minutes to an hour to close up the opening. they replaced the artery. they also replaced the valve using a pig's valve instead of the human valve. there was another valve between the two heart chambers on the right side of the heart that was "leaking" that was also repaired. they did not have to perform the arrythmia procedure b/c cort's heart regulated itself. that would have added time to the procedure. the pacemaker was placed in his abdomin, and according to the doctor it is one of the best pacemaker's available. it can be programmed from outside his body, eliminating the need for further minor surgery to change the program if need be. when we left (that is--cort's best friend, heather, my boyfriend, eric, and i) we had seen cort in the icu. since this is really the first surgery i have been fully aware of, seeing him in the icu may have seemed more extreme to me than it really was...he looked pale, but he was breathing well on the ventilator. he was under sedatives to keep him from moving, and pain killers. there were a lot of tubes running everywhere and you could see his heart beating in a sense...but the doctors and the nurses said he was doing well. mom and dad will be staying at the hospital until later this evening, but will be coming home to sleep in their own bed tonight if his condition remains in good status. eric, heather, and i will be staying the night at home as well, and headed back to the hospital in the morning. the nurse told me that they would decide in the morning when to wake him up. the three of us should arrive home around four in the afternoon (tuesday) and that will be when i will send the next update unless his condition changes at all. to sum it up, he is doing well, recovering in the icu. he is still on the ventilator and has a lot medication going through him to keep him from moving, and to help for pain he might have. they will most likely wake him up tomorrow, and go from there on taking him off the ventilator. please feel free to email if you have any specific questions. i will try to check my email tonight and tomorrow morning and respond to what i can before we head back the hospital in the morning. please excuse any gramatical and spelling errors as it has been a long day with not much rest from the night before... God Bless, Joylyn aka Cort's lil sis. >>"cort update", 01/07/2003, 04:20p<< hello again: thank you all for the many emails of encouragement. this morning when i checked email mom and dad were with me, and we were all able to look at the emails together. i am sorry if i don't email all of you back personally... we all slept very well last night, and that rest was much needed. cort had a good night as well. he was taken off the paralytic medicine this morning. when the doctors were in this morning they were happy with how he was doing. he is still on the ventilator, and taking breaths on his own every once in awhile. he is still not awake. mom and dad are staying at the hospital until later this evening, and will call if he wakes up tonight. if he does, his friend, heather, and i might head back to the hospital tonight. i will return to work tomorrow (wed.) and won't be able to see cort again until tomorrow evening. i will send another update later tonight, if he wakes up, or i will until after we have seen him tomorrow evening. again, thank you all for the love, support, and prayers. i will pass everything on to cort when he is aware enough! God Bless, joylyn >>"another update", 01/08/2003, 12:52a<< hello again: mom and dad were at the hospital longer than anticipated because cort was awake and wanting to communicate some tonight. he was motioning and writing a little bit, asking how everything went, and questions like that. he still is not yet breathing on his own, and he motioned for his tubes to be cleaned. he probably won't remember what all went on this evening, but we are hoping by tomorrow he will be even more alert. i am looking forward to seeing him tomorrow evening, and i will send another update after i get to see him again. again, thank you for the amount of support all of you have shown. i have printed off so many emails for cort to read in the hospital my eyes are crossed! ;-). God Bless, joylyn Cort | 38.m.IL | pigValve + paceMaker | 5 Monte Carlos + 1 Caprice Classic * PRE-SURGERY PARTY = ~5:30p-10:30p, Saturday, 10/29/2011 at Beef Villa, 1225 W Spring St, S Elgin IL * "Watch over them for me" __ Darryl Worley __ 'If Something Should Happen' Quote Link to comment Share on other sites More sharing options...
knightfan26917 Posted October 28, 2011 Author Report Share Posted October 28, 2011 * The closer surgery gets, the more dread I feel. I know the drill, so I'm not worried ... just frustrated for many reasons on several levels. I don't always have a positive outlook...ha! PREP WORK: Another step closer. Pre-op testing complete. Blood work, Xray, EKG, 24-hour Holter monitor, 24-hour urine test. Catheterization and surgery in less than 2 weeks. Still have to prep my cars for winter storage, BUT FIRST... ...PARTY TIME: Pre-surgery fun is THIS Saturday, 10/29/2011, ~5:30p-10:30p. Beef Villa will offer some SPECIAL DEALS! CHD Quilt #35 is the home of my Quilt Block, middle row, far left: http://www.chdquilt.org/files/Quilts/chdq35.jpg Cort | 38.m.IL | pigValve + paceMaker | 5 Monte Carlos + 1 Caprice Classic * PRE-SURGERY PARTY = ~5:30p-10:30p, Saturday, 10/29/2011 at Beef Villa, 1225 W Spring St, S Elgin IL * "Need a second to breathe" __ Adam Lambert __ 'What Do You Want From Me?' Quote Link to comment Share on other sites More sharing options...
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